Accelerating Cures of Tomorrow
The rare genomics institute was founded in 2011 with a mission to use genomics to help kids with rare diseases.
Research projects are designed around the patient with a rare disease.
Check out the patient advocate team at rareshare.org.
The genetic science team is developing the rare disease commons.
Crowd funding helps patients to gain the funding to support genomic sequencing. 64% exceed their goals and typically donate the extra funds to help others do the same.
Approaching crowd funding:
- have a game plan
- have a key message
- have a team to promote
- interact with your community
Check out amplifyhope.raregenomics.org for more information.
Check out http://2.healthca.mp/1DCCU7o
[category News, Health]
[tag health, cloud, ONC, opendata, health2stat]
Health & Cloud Technology Consultant
Mark is available for challenging assignments at the intersection of Health and Technology using Big Data, Mobile and Cloud Technologies. If you need help to move, or create, your health applications in the cloud let’s talk.
Stay up-to-date: Twitter @ekivemark
I am currently HHS Entrepreneur-in-Residence working on an assignment to update BlueButton for Medicare Beneficiaries.
The views expressed on this blog are my own.
I am also a Patient Engagement Advisor, CTO and Co-Founder to Medyear.com. Medyear is a powerful free tool that helps you collect, organize and securely share health information, however you want. Manage your own health records today.
Medyear: Less Hassle, Better Care.
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