Thursday, September 17, 2009

ePatientDave and Participatory Medicine

We take our pants off for the Doctor - why not share data?

Every patient has a right to save themselves.

Incredibly moving to hear from a patient.

"My doctor prescribed ACOR"

Patient communities are responsive.

In HealthCare technology spend just 1% for the patients. it will make a big difference.

It is humanly impossible to keep up. Patients can help as filters .

Clayton Christensen - Centralization is followed by Decentralization.

This is dependent upon processes becoming reliable and data being mobile.

"Unmanaged data quality produces train wrecks."

The Medical Information Bank (MIB) is a source of data quality risks.

Private insurance industry databank holding your billing data.

HealthDataRights.org published a Declaration of Health Data Rights.