@Gfry Gilles Frydman of ACOR led the discussion on the future of online communities.
Is the objective to "make me better" or to "cure the disease" - These are two different objectives.
ACOR wants to work out how to de-identify data in their archives so they can open the data to the world.
80% of people who find ACOR come from Google.
"The next generation of on-line communities should be built on schemas designed by the communities themselves."
"Social Structured Data Systems"
The current generation have been designed by specialists.
"While we wait for the revolution people are dying" We have to start change now - even if it only impacts a few people.
"If Health wants to make a difference then we have to move from using facts and figures to talking to the heart."