@Gfry Gilles Frydman of ACOR led the discussion on the future of online communities.
Is the objective to "make me better" or to "cure the disease" - These are two different objectives.
ACOR wants to work out how to de-identify data in their archives so they can open the data to the world.
80% of people who find ACOR come from Google.
"The next generation of on-line communities should be built on schemas designed by the communities themselves."
"Social Structured Data Systems"
The current generation have been designed by specialists.
General discussion:
"While we wait for the revolution people are dying" We have to start change now - even if it only impacts a few people.
"If Health wants to make a difference then we have to move from using facts and figures to talking to the heart."
