Emily Kramer-Golinkoff tells her health story and her founding of Emily’s Entourage to help sufferers of Cystic Fibrosis.Check out EmilysEntourage.org
Emily is a patient-scientist. Patient Empowerment is a living breathing thing.
Patient’s are the hub of their own health care. They generate data and monitor trends.
Emily spends 1.5 months per year performing and preparing for her regular medical care. This excludes time spent with doctors.
Patient’s talk with friends and fellow sufferers to compare notes and learn from each other.
Patient’s need a team that trust’s their judgement.
Magic happens when patients and care teams work together with the patient treated as an equal expert.
People are sharing information but it is not getting catalogued and indexed.
It is time to pop the health care bubble.
[tag health cloud Genomics]
Mark Scrimshire
Health & Cloud Technology Consultant
Mark is available for challenging assignments at the intersection of Health and Technology using Big Data, Mobile and Cloud Technologies. If you need help to move, or create, your health applications in the cloud let’s talk.
Blog: http://2.healthca.mp/1b61Q7M
email: mark@ekivemark.com
Stay up-to-date: Twitter @ekivemark
Disclosure: I began as a Patient Engagement Advisor and am now CTO to Personiform, Inc. and their Medyear.com platform. Medyear is a powerful free tool that helps you collect, organize and securely share health information, however you want. Manage your own health records today. Medyear: The Power Grid for your Health.
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