Wednesday, June 03, 2015

#HDPalooza Glyn Elywn – Talking about Missing Data

Health Data Palooza 2015 Talking about missing Data

Realtime notes from day 3 of the HealthData Palooza 2015 (#HDPalooza) in Washington DC.

Glyn Elwyn, BA, MD, MSc, PhD, Physician-Researcher, The Dartmouth Institute for Health & Clinical Practice

Missing Data…. Preference Diagnosis

Health Care is changing before our eyes.

Patient will have choice and the patient will pick the treatments that they prefer.
The decision will then be integrated in to the treatment pathway.

People have to be informed before they make a decision.

Information should be free of competing interests. eg. the Pharma company or Device manufacturer.

CollaboRATE – designed with patients at Dartmouth.

Simple 30 second survey with 10 point score (0 to 9).

  1. How much effort was made to help you understand your health issue?
  2. How much effort was made to listen to the things that matter most to you about your health issues?

  3. How much effort was made to include what matters most to you in choosing what to do next?

People act in their own interests.
Decision making is not easy.

We have zero data on informed patient preference.

[category News, Health]
[tag health cloud, bluebutton, hdpalooza]

Mark Scrimshire

IT and Health Data Ninja

Mark is available for challenging assignments at the intersection of Health and Technology using Big Data, Mobile and Cloud Technologies. If you need help to move, or create, your health applications in the cloud let’s talk.
Stay up-to-date: Twitter @ekivemark

I am currently HHS Entrepreneur-in-Residence working on an assignment to update BlueButton for Medicare Beneficiaries. This involves creating a Data API. Watch out for more about BlueButton on FHIR.

The views expressed on this blog are my own.

I am also a Patient Engagement Advisor, CTO and Co-Founder to Medyear is a powerful free tool that helps you collect, organize and securely share health information, however you want. Manage your own health records today.

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