Saturday, July 30, 2011

#hcfla Caregiving: It is not as easy as you think - Pam Gaylor

The fascinating story of a changing role for an entire family. a two plus year journey.

Mother fell. Child to Parent. Job change to become caregiver. From a traveling job to a locally based role.

The Pits

- Becoming the advocate
- Frustration with the system
- Home Health Care Nightmare
- Becoming a nurse
- Becoming a research expert
- Support is minimal

The Rewards
- Becoming the Nurse/Research Expert
- Seeing her Mom's improvement
- Giving ALWAYS outweighs Receiving
- New Enriched Life with New Friends

Starting CareGiver's Foundation

Learnings

- Organization is key
- Find Time for You
- Go with your Gut
- Humor
- Document, Document, Document
- Persistence Pays
- Technology

Now for the discussion…..

How do you handle the changing role?
Sons and daughters have different roles because of perceptions of the parent.

Hospice is engaged when people have a 6 month life expectancy.

Technology

Internet - Google is my Friend
Continual Connection to new Technologies
Using Memory Mate

We also talked about BeClose as a monitoring tool set.

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