5) INTERNATIONAL: Open Data Initiatives
This session will discuss open data initiatives and priorities in several countries, including government efforts to release data, and subsequent use by entrepreneurs to create novel applications and services. Key insights derived from secondary uses of health data will also be discussed.
- Tim Kelsey, Telstra Health, Australia (Host)
- Elizabeth Kittrie, National Institutes of Health (Moderator)
- Ran Balicer, Clalit Health Services
- Jay Barber, Public Health Agency of Canada (PHAC)
- Damon Davis, US Department of Health and Human Services
- Emma Doyle, National Health Service (NHS), England
- Wendy Thompson, Centre for Chronic Disease Prevention (PHAC)
- Franck von Lennep, French Ministry of Health
- Nir Yanovsky, Ministry of Health, Israel
Open Data In Canada
Canadian Public health Agency
Open Data is a priority alongside Open Government.
Make data available in machine readable format.
Squalid Salad – great example of using open health data:
Also looking at how data can be ingested.
National Health Data System.
Information on all citizens.
3 years ago reviewed access rights and developed new approach that was signed in to law in Jan 2016.
Creating a new framework for data use.
Data marts and low-risk datasets are being created
Open health Data
What’s next: a new governance framework. Creating a public private consortium. Business model to set access payments.
More anonymization to enable easier access.
Hackathons: May 10th – Home Help Hackathon in Paris.
Launched online public consultations to cover patients sharing of their data.
Israel -Data highways for 21st Century Healthcare
Israel has a new big data platform.
All citizens have an identity number.
Privacy and Security are high risks. But big data offers high rewards.
EMRs track all patient interactions. 99% of israelis have a longitudinal medical record.
Israel has a national Health information exchange platform. There is no central national database.
The next step is to use the data for research.
Research users are certified. The platform will be completed by end of 2016.
Focus is on gathering data through voluntary agreements.
Platform is a cloud application.
Israel has decades of EHR and cloud data.
Still the same problems: a system focused on treatment rather than prevention.
Changing emphasis. eg. Renal disease. Focusing on prevention rather than increasing renal dialysis capacity.
Built predictive model to identify renal failure 5 years in advance.
This is enabling them to identify patients at risk. The data can be fed back to providers EMR systems.
another example: tracked use of antibiotics.
have been able to tackle high usage og
f high spectrum antibiotics. which exacerbate the problem. result: they are educating providers on the issue.
demonstrate value quickly before political will disappears
PDFFs do not count as machine readable formats…
hackathons, pizza and beer are all part of open health data
the big idea:
6 nations supporting open data.
Now is the time to create a specific health segment.
Israel working on translation between ICD9 /10 and snomed.
France has a good representation of rare disease due to 99% coverage of french population. but clinical data is still lacking.
HHS: created ac partnership with private sector. example was exporting data to Optum Labs data enclave. Also CMS VRDC http://2.healthca.mp/1ObLH7M
In Canada their is a legal framework in place. The challenge is in getting Machine Readable data created.
Silicon Valley Stealth Question
What are countries doing to give patients access to their data.
UK: Almost every doctors practice has given patients access to their record.
Where they lag is in letting users download their data.
Canada: Get info on physician, hospitals. Can’t get access to your health record. Provinces are in different stages of 5 year plan to allow access
France: Working on a French BlueButton – but no clinical data.
Israel: Community Care have access to care records.
[category News, Health]
[tag health, cloud, ONC, opendata, hdpalooza, bluebutton]
Health & Cloud Technology Consultant
Mark is available for challenging assignments at the intersection of Health and Technology using Big Data, Mobile and Cloud Technologies. If you need help to move, or create, your health applications in the cloud let’s talk.
Stay up-to-date: Twitter @ekivemark
I am currently HHS Entrepreneur-in-Residence and CMS BlueButton Innovator working on an assignment to update BlueButton for Medicare Beneficiaries.
The views expressed on this blog are my own.
I am also a Patient Engagement Advisor, CTO and Co-Founder to Medyear.com. Medyear is a powerful free tool that helps you collect, organize and securely share health information, however you want. Manage your own health records today.
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