Tuesday, May 10, 2016

#HDPalooza #VABraintrust Data-Driven Innovations for Invisible Illness, Mental Health, and Suicide Prevention

# CONSUMER: Data-Driven Innovations for Invisible Illness, Mental Health, and Suicide Prevention
New solutions are emerging from big data, open data, and data-driven innovations to address mental health, invisible illness, and suicide prevention. Nonetheless, Americans still suffer undiagnosed, undertreated, or untreated mental-health challenges and invisible illnesses (e.g., traumatic brain injuries, chronic pain, rheumatoid arthritis, chronic fatigue, fibromyalgia, Lyme disease) that can lead to depression and increase risk for suicide. To combat this, The White House Office of Science and Technology Policy (OSTP) and the U.S. Department of Veterans Affairs (VA) will showcase government open datasets and APIs being used to strengthen awareness of mental illness, identify new opportunities for treatment, and strengthen communities for improved patient outcomes. By working together with open minds, data, medical treatment, and innovations, we can promote mental health and save lives.

  • Monica Basco, National Institutes of Health (Moderator)
  • Bob Filbin, Crisis Text Line
  • Kristen Honey, White House Office of Science and Technology Policy
  • Andrea Ippolito, U.S. Department of Veterans Affairs
  • Nevena Zubcevik, Harvard University





Crisis Text Line – Bob Filbin

Text has many uses. They allow communication in sensitive places, like the workplace, where it is hard to have a sensitive converation.

Crisis Text Line is a free national 24×7 text line for those in crisis.

ETL – Extract Transform Load is a major challenge. It is needed to lay groundwork for analysis of data.

Since 2013: 16.4M Messages. (Suicide and related = 35%)

2,936 Active rescues (Where Emergency Services are dispatched).
1,500 volunteer crisis counsellors.

37% of applicants get to become counsellors after 35 hour online course.


99% match if used in same messge then liekly a family issue.

TREMBLING + DOOM = 99% chance of Anxiety attack.

Apply local expertise on a national scale.

BRAVE / SMART / PROUD = Positive strength IDs

www.crisistrends.org – Public aggregated data.

Alaska and Montana are 2 of top states for Suicidal thoughts.

Real time data means there is greater precision to generic CDC data.

At Hack-a-thon addressed Mandatory Reporting – Working with Federal experts to define reporting needs/requirements.

Nevena Zubcevik, Harvard University

Chronic Illness data is messy.

Many things contribute to mental illness. Many are preventable. Depression is a common result.

We need better diagnostics.

The Moderator asked for suggestions to improve data flow.

The Answer: Apply BlueButton On FHIR to all EMRs so patients can get their data in machine readable format and they can direct it to the applications, services or research programs they trust.

[category News, Health]
[tag health, cloud, ONC, opendata, hdpalooza, bluebutton]

Mark Scrimshire
Health & Cloud Technology Consultant

Mark is available for challenging assignments at the intersection of Health and Technology using Big Data, Mobile and Cloud Technologies. If you need help to move, or create, your health applications in the cloud let’s talk.
Blog: http://2.healthca.mp/1b61Q7M
email: mark@ekivemark.com
Stay up-to-date: Twitter @ekivemark

I am currently HHS Entrepreneur-in-Residence and CMS BlueButton Innovator working on an assignment to update BlueButton for Medicare Beneficiaries.

The views expressed on this blog are my own.

I am also a Patient Engagement Advisor, CTO and Co-Founder to Medyear.com. Medyear is a powerful free tool that helps you collect, organize and securely share health information, however you want. Manage your own health records today.
Medyear: Less Hassle, Better Care.

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