Saturday, September 22, 2012

#Cinderblocks HIT Policy and the patient

Health Care happens with me, not to me.

Nothing about me, without me.

A session by Jim Hansen
3:00-3:45 HIT Panel

Jim Hansen : 

"Consumer/Patient Experience in a Transformed
 Health and Health Care System 

Jim Hansen serves as Vice President and Executive Director of the Dossia Consortium, a not-for-profit association that brings together major employers - including AT&T, Intel & Walmart - representing over five million employees, dependents and retirees to advance the use health information technology to improve the safety, quality and efficiency of health and health care for all consumers and patients.

Mr. Hansen possesses 30 years of information technology, strategic planning, product development, marketing, operations and finance experience including 20 years within the health care industry.  His journey in consumer/patient engagement began as a member of the Health Partners (Minnesota) team that created the innovative Consumer Choice System in 1994.  Prior to joining the Dossia Consortium, he was founding President and CEO of CareEntrust, an award-winning not-for-profit employer-sponsored health information exchange (HIE) delivering secure regional health record services for use by both consumer/patients and health care providers.

Mr. Hansen is actively involved with a consumer/patient perspective in a number of national health and health care transformation supporting organizations including the Institute of Medicine (multiple groups), ONC S&I Framework Transitions of Care workgroup, and most recently DirectTrust (a group developing a trust framework for Direct).  He was previously a long time working member of the Healthcare Information Technology Standards Panel’s (HITSP) consumer workgroup.

"There is a business model for Health Information Exchange (HIE)  - It's the Patient!"

Bipartisan Policy Center is the only sane resource for information in the toxic area that is Washington DC.

Veterinarians treat our pets better than we are treated by the health care system.

it is interesting - beta version of customer-facing PHR based on Dossia.


Next up: PocketHealth

Where can you put your Dam Data.

1. Paper copies in a file
2. Patient Portal
3. Personal Health Record

EHR v PHR - the difference?

EHR is a business record that a provider uses to deliver care

PHR is used by a person to manage their health information.

A Patient Portal is a feature of an EHR. A window on to your data in their EHR.
Most provide more features - such as secure communications with providers, appointment requests, refill requests and access to educational material.

If your doctor moves health system. You can follow him, but your data will not.

A Tethered PHR is linked to an employer or insurance company.. It doesn't go with you when you change employers or insurance.

An Independent PHR, like Microsoft HealthVault, the deceased Google Health, Less likely to have administrative functions for interacting with providers or insurers. eg. Appointment bookings, refill requests etc.

PocketHealth is a mobile PHR. The data sits on your Smartphone.

What does Stage 2 Meaningful Use mean for patients?

- Eligible Providers must provide patients with ability to view, download and transmit their health information within 4 days of being available.

- Eligible Hospitals must provide the same about a hospital admission within 36 hours of discharge.

These are game changing rules for PHRs because these rules include allowing data to be downloaded  to a PHR.

Our Health System is insane. We don't even record what works.

Josh C. Rubin, JD, MBA, MPH, MPP, is the the Executive Director of the Joseph H. Kanter Family Foundation and Health Legacy Partnership (KFF). Josh brings to KFF not only energy and experience, but an evidenced strong commitment to KFF's mission. In 2009, KFF contracted with Josh's then-employer eHealth Initiative (eHI – a multi-stakeholder Washington-DC based nonprofit organization whose mission is to drive improvements in healthcare quality, safety, and efficiency through information and information technology) to have Josh conduct global research on international uses of electronic health records (EHRs) for outcomes research purposes; research that served as the foundation upon which KFF's international working meeting was developed, in collaboration with The Commonwealth Fund. As Josh learned more about KFF's vision for a Learning Health System (LHS), he not only articulated his belief in KFF's mission, but volunteered hundreds of hours of his time and expertise over to serve as an advisor, to build partnerships and seek out new opportunities for KFF, to conduct research, and to refine and advance KFF’s mission -- before ultimately becoming KFF's Executive Director. Embracing Nelson Mandela's notion that "Many things seem impossible until they are done," Josh is exceptionally committed to doing whatever it takes to surmount any obstacles along the path to effectuating KFF's vision for a national-scale LHS that will advance medical research and patient safety, transform the practice of medicine, and empower clinicians and patients.

We must learn from our health experiences. 

Health IT is about unlocking the potential for people to help themselves.

We should be able to make decisions based upon data that encapsulates the experiences of people like us.

A Learning Health System - A foundation of the Federal Health IT System.

Meaningful Use is a status achieved by an individual. 
A Learning Health System is a system that enables MU.